Mobility: Great. Looking forward to beginning work with braces in the next few weeks.
Pain: Normal pain (i.e. his back/neck might hurt if he's had bad posture throughout the day, or his arms might hurt after a workout). Nothing terrible and, more often than not, nothing that even requires Ibuprofen.
Exercise and Therapy: We've upped his time at SCI-FIT to six hours per week. He is really getting a lot out of those sessions. Yesterday was his first day back working out since the holidays, and he said he could feel a lot more during his session (feeling more in the low back and quads). I also got to watch his session for the first time in several weeks. I could see a BIG difference. Things have gotten easier for him, and his movements seem smoother and more controlled.
Daily Life Activities: I can't think of much that Jason can't do now, other than take Sonja on long walks by himself (he can do short, solo walks without any trouble). He'll be put to the test this coming week-I'll be gone and Gail is having a medical procedure done on Tuesday that will put her out of commission for a bit. Jason will be responsible for almost all of Savannah's care...
Exercise and Therapy: We've upped his time at SCI-FIT to six hours per week. He is really getting a lot out of those sessions. Yesterday was his first day back working out since the holidays, and he said he could feel a lot more during his session (feeling more in the low back and quads). I also got to watch his session for the first time in several weeks. I could see a BIG difference. Things have gotten easier for him, and his movements seem smoother and more controlled.
Daily Life Activities: I can't think of much that Jason can't do now, other than take Sonja on long walks by himself (he can do short, solo walks without any trouble). He'll be put to the test this coming week-I'll be gone and Gail is having a medical procedure done on Tuesday that will put her out of commission for a bit. Jason will be responsible for almost all of Savannah's care...
Sensation/Motor Control: So, exciting news on this front. He's getting more consistent feeling in his quads (Still just the "deep touch" type of sensation), and he can flex his calves now! It's not a very strong movement, but it's definitely there. This means some signals are getting to the lower limbs...woohoo :)
Biggest Problem Area: The wheelchair...we've been trying to get him a lower seat back, which has turned out to be harder than it should be. Jason has an appointment with his wheelchair vendor on Monday, so, hopefully, this will all get resolved....
Biggest Success: Flexing his calf muscles :)
In the next month, we hope to..... get the official referral to return to PT for work with the leg braces (appointment for that is Feb 7), get the wheelchair situation worked out.
Biggest Problem Area: The wheelchair...we've been trying to get him a lower seat back, which has turned out to be harder than it should be. Jason has an appointment with his wheelchair vendor on Monday, so, hopefully, this will all get resolved....
Biggest Success: Flexing his calf muscles :)
In the next month, we hope to..... get the official referral to return to PT for work with the leg braces (appointment for that is Feb 7), get the wheelchair situation worked out.
For those of you interested in some community service/involvement.... I've been in contact with Andrew Skinner, the founder of the Triumph Foundation(http://www.triumph-foundation.org/), and, after I return from Scotland, I'm hoping to begin working with him to put together care baskets for the new SCI patients at Santa Clara Valley Medical. Let me know if you'd be interested in helping out with this (by donating items for the baskets, writing notes, etc etc). A lot of the people at SCVMC are on their own most of the time, since their families don't live near the hospital, so getting a care package would really lift their spirits.
All my love,
Ashley
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